Community Resources

Hero patient resources

Support for patients, their families and caregivers.

Patient advocacy organizations can serve an essential role in supporting patients, their families and caregivers. The following organizations offer resources and information to help navigate the complex therapeutic landscape, and uniQure is proud to collaborate with each of them:

Huntington’s disease

  • Huntington’s Disease Society of America

    505 Eighth Avenue / Suite 902
    New York, NY 10018

    View Website
  • European Huntington Association

    Vognsneset 30
    4643 Søgne

    View Website


North America

  • The Coalition for Hemophilia B

    825 3rd Ave #2
    New York, NY 10022
    (212) 520-8272

    View Website
  • Hemophilia Federation of America

    820 First St NE #720
    Washington, DC 20002
    (202) 675-6984

    View Website
  • National Hemophilia Foundation

    7 Penn Plaza Suite 1204
    New York, NY 10001
    (212) 328-3700

    View Website
  • LA Kelley Communications

    View Website



Rare Disease Organizations

United States


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